Hi everybody I know I haven’t written in a long time, maybe I just got lazy. I had started putting on weight I think I put on at least a stone. Don’t worry I have since lost a few. I know a lot of people say I shouldn’t focus on my weight but it’s not that easy when you have sliding wardrobes of which two panels are mirrors that when closed are showing you exactly what you look like lol.

Anyway I am recuperating well the wound had healed nice I can still feel it itching at times. At 3 and half months I started going downstairs more regularly and started doing little chores like breakfast and kids dinner. I have to keep reminding myself not to do too much. I think I started cleaning bathrooms as well not too much bending or vacuuming or prolonged ironing but anything else I could pretty much do. I still made sure I rested for at least 85% of the time.

At 5 months I decided as I wasn’t going to be driving to soon ( it was just so daunting for me I was actually scared of the flare up with no real benefit) I made a decision to walk the kids to school which was 20 minutes to and 20 minutes back. The first week was horrendous it was flaring up so much I didn’t know what to do. As I don’t take Gabapentin on a long term basis, when I take it for flare ups it really does help.

To my surprise though the next week was a lot better and I was losing weight so I decided to buy myself some new outfits a whole new image. I love my nieces my three little musketeers, they are 20 years old and full of so much sass. They get my mind set they really are what I am and so they came round and gave me the boost I needed. The first time after a long time I was now optimistic again.

If I have a full day even now I can flare but I remember Dr Dixon saying that nay benefit is a good sign that it can improve in time and so I am going to hold on to that.

The other great thing that happened only last week is that husband was playing dodgeball with my son and I decided to join in. I had a brilliant time destroying them both but the best thing was I didn’t flare that night (yay)

I drove twice last week just to drop kids off as it was raining, I used my PN cushion. It was not too painful but I felt a few twitches and today I went to a kind of talk and I sat on the floor but I am feeling a bit flared now. So it is weird but there are promising points to focus on too and I have watched all the series that have ever existed of anything lol.

I might start writing about other things too now, make it a proper blog lol.

I am so grateful to my family and my PN family those who are always there when I need them.

Additional Note:

I wrote the rest yesterday and I mentioned going for a talk where I tucked my legs to the side whilst sitting on the floor. It was for 3 hours and last night I was quite flared up I had to take Gabapentin on top of my usual dose of Co-codamol and Tramadol. Today  I am still quite sore.

The reason why I go into so much detail is because I want you all to know you don’t just spring back up. Thankfully I have my friends on the PN group whom I annoy with my countless questions and every time they reassure me that it will take time and this in turn helps me to be patient and stay hopeful. I am going to rest today and see what happens.

Have to love you and leave you. My next post might not be about PN but about something more complex and dear to me.

Stay tuned…